Desfechos sociais de pacientes com epilepsia de início na infância ou adolescência

Version 1.0
Damião, Victoria de Souza; Coan, Ana Carolina, 2025, "Desfechos sociais de pacientes com epilepsia de início na infância ou adolescência", https://doi.org/10.25824/redu/8ACPJW, Repositório de Dados de Pesquisa da Unicamp, V1
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Description
The study evaluates the social outcomes of adults with unresolved epilepsy who experienced seizure onset in childhood or adolescence. A standardized questionnaire was administered to 96 patients aged 21 or older, covering aspects such as social prognosis, comorbidities, epilepsy characteristics, school difficulties, and family structure. Findings indicate that adults with childhood-onset epilepsy face significant social challenges, including lower education levels, higher unemployment rates, financial dependence, and lower marriage rates. Intellectual disability was associated with more severe social impairments. The study emphasizes the need for targeted interventions to enhance social integration and support for these individuals. The data cannot be made available due to ethical considerations related to the ongoing project. (2025-01-29)
Subject Medicine, Health and Life Sciences
Keyword Epilepsy, Childhood-onset epilepsy, Social outcomes Intellectual disability, Quality of life, Employment, Education, Neurodevelopment
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